TV star Jake Quickenden is taking part in a 100km (62 mile) walk to help a baby who was born weighing less than a bag of sugar. He is walking alongside his friend Charlie Lawrence, whose daughter, Celine, was diagnosed with myotonic dystrophy, a rare genetic condition, when she was a month old.
The fundraising event was organised by Ethan Leroy, a friend of the couple, who said he was not deterred by the warm weather in Colchester on Thursday morning. "I love it," the 34-year-old said at the start line on Colchester High Street. "I'd rather the sunshine than the rain."
The couple, Lottie Mears and Charlie Lawrence, welcomed their first daughter, Celine, in December 2023. She was diagnosed with myotonic dystrophy, a genetic condition which leads to progressive muscle weakening. Symptoms can start at any age but they are generally more severe in children. There is currently no cure.
A total of 37 people started the 24-hour walk from Colchester Town Hall to Trafalgar Square in central London on Thursday morning. More walkers would join the rest of the team along the route, and Celine would be carried on the trip for the last part.
Mr Lawrence and his partner, Lottie Mears, started the "Save CC" campaign with the hope of raising £200,000 to fund potentially life-changing treatment for Celine. Nearly £38,000 has been donated towards the cost of Celine's treatment so far. Her parents hope she will be able to receive stem cell therapy to slow the weakening of her muscles.
Miss Mears and Mr Lawrence have been told their daughter will never have a normally functioning immune system. "Five months ago we didn't think she was going to make it out of hospital and now she's got half a chance so we're all taking it in our stride to give her a good chance at life." Mr Lawrence said.
The walk is a testament to the power of community and the unwavering support of those who believe in Celine's chance at a better future. This incredible journey exemplifies the spirit of hope, resilience, and the collective determination to fight for a child's life.
Celine's Condition
Myotonic dystrophy, also known as Steinert's disease, is a rare genetic condition that affects the muscles and other organs. It is characterized by muscle weakness, stiffness, and difficulty relaxing muscles after contraction. The severity of the condition can vary greatly from person to person, with some individuals experiencing only mild symptoms while others have more severe limitations.
Treatment and Hope
There is currently no cure for myotonic dystrophy, but there are treatments available to manage the symptoms and slow the progression of the disease. These treatments can include physical therapy, occupational therapy, and medications.
A Walk for a Future
The 100km walk is a testament to the love and dedication of the community that has rallied around Celine and her family. It is a powerful reminder that even in the face of adversity, hope and determination can triumph. The support from the community, coupled with the fundraising efforts, is a beacon of hope for Celine's future.
The walk has brought together people from all walks of life, united by a common goal: to give Celine a chance at a healthy and fulfilling life. The journey is a symbol of perseverance, and the unwavering belief in the power of community to make a difference. It is a powerful reminder that even the smallest acts of kindness can have a profound impact on someone's life.
The journey from Colchester Town Hall to Trafalgar Square is not just about physical endurance, it is a journey of hope and love. It is a testament to the resilience of the human spirit and the unwavering belief in the power of community. It is a journey that inspires us all to reach out and help those in need, and to believe that anything is possible with love, compassion, and determination.
The Power of Community
The outpouring of support for Celine's family is a powerful reminder of the strength of human connection. This event has demonstrated that even in times of great difficulty, people can come together to provide support and hope. It is a reminder that we are not alone in our struggles, and that together, we can overcome any challenge.
